who suffered from the same epilepsy syndrome that torments my youngest son. My wife was the primary force behind the 2014 legislation that first made CBD legal for the treatment of epilepsy sufferers in Utah, and that CBD oil - known as "Charlotte's Web" - was named after this little girl. In our circles, she was a hero and a pioneer and a celebrity.

Just 15 minutes ago, my wife walked out the front door and said, "Charlotte died." It just about killed me. And my mind can't help but go once again straight to my son who is hunkered away with his caretakers at the Utah State Developmental Center. Very scary times in the epilepsy community.

RIP, Charlotte. Nobody deserves the life you were dealt.