It is a very difficult and isolating disease that still often carries a stigma.
If there is anyone here that struggles with this and needs someone to talk to, please BM me. I'd be more than happy to talk. I am not a physician or psychologist. But I do understand and have a couple decades of experience. I know many of the resources, nutritional, doctors, psychologist therapies, alternative treatments when the others don't work, etc. ... My heart hurts for all those that struggle, and all those that patiently wait out the storms of their loved ones. May you be blessed.
NOTE: There is always hope. I have seen long time sufferers who had lost hope in doctors, medicine, etc. Finally find healing.