Cardiac issues

I believe their quality of life and life span is generally really good as the couple patients I have are high functioning adults. They have a distinct look that some docs could catch but overall even that can surprise me where I didn’t know until looking in the chart.

As u mentioned probably variable and I’m sure you’ll get a lot of good info but it’s not a condition where my initial reaction would be one of overwhelming sadness if that makes sense (if I heard my family member had a child on their with it.

Good luck to you and your wife.