Super helpful. Thank you. She has mild physical delay, but that may be due to

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Nov 23, 2022
8:58:38am

ebv All-American

Club feet and some mild torticolis we’ve been doing therapy for.

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ebv

Bio page: ebv
Joined: Jan 12, 2011
Last login: May 10, 2024
Total posts: 11,897 (679 FO)

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Messages

Author

Time

Any neurologists on the board? Worried that our 6-month old has infantile spasms

ebv

11/23/22 3:29am

I'll repost later when everyone is awake

ebv

11/23/22 3:29am

Not a neurologist. I don’t think I’ve ever seen one one the board.

5150man

11/23/22 4:16am

Thanks friend! She’s our fifth and I’m worried we haven’t been paying attention

ebv

11/23/22 4:20am

I should have added a 3rd thing. Do not do medical research alone at 3am!😉

5150man

11/23/22 5:06am

And being your 5th child and having concerns definitely makes my ears perk up a bit.

5150man

11/23/22 5:08am

I’m not aware of any neurologists on the board. Depending on where you live I

orrin7

11/23/22 5:17am

Agree that first step is getting 3-4 episodes on video

cougfanz

11/23/22 5:47am

Will try this morning.

ebv

11/23/22 6:11am

Not Peds trained…

DrJazzy

11/23/22 7:51am

Super helpful. Thank you. She has mild physical delay, but that may be due to

ebv

11/23/22 8:58am

Our pediatrician isn’t terribly concerned. We were able to book a visit to the

ebv

11/23/22 9:38am

I think that is smart. One caution for MRIs is a child of that age has to be

orrin7

11/23/22 9:51am

Thank you. Doing more research this might well be Sandifer. She had severe acid

ebv

11/23/22 10:25am

Also, thinking on it more, these seizures tend to occur right after a feeding

ebv

11/23/22 10:25am

Def sounds like sandifer’s.

DrJazzy

11/23/22 10:40am

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