Fibromyalgia, like POTS & Chronic Fatigue, isn't really a defined entity

Jul 20, 2021
3:42:25pm

SouthernCoug All-American

It is merely a collection of symptoms with no identifiable cause that conveniently tends to respond to the same therapies.

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SouthernCoug

Bio page: SouthernCoug
Joined: May 23, 2001
Last login: May 22, 2024
Total posts: 7,227 (481 FO)

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Messages

Author

Time

Has anyone here been diagnosed w/ fibromyalgia? If so, how was it diagnosed &

BleedCougarBlue2

7/19/21 6:30pm

Have you tried a structural integrated massage therapist?

kccougar

7/19/21 6:33pm

Nope. Had my wife try to give a high pressure/direct massage once. Seemed to

BleedCougarBlue2

7/19/21 6:42pm

Is this a real thing? Can you say more about what they do?

JoMax

7/19/21 7:16pm

Did you get any rashes anywhere? Shingles can manifest as pain like that…

Tokolosh

7/19/21 6:40pm

Nope, no rashes at all.

BleedCougarBlue2

7/19/21 6:41pm

Shingles can manifest without rash. Skin still feels extremely sensitive.

bluebooks

7/19/21 7:45pm

Does shingles cause an increase in skin sensitivity? I haven't noticed any.

BleedCougarBlue2

7/19/21 7:50pm

Couple things to know about fibromyalgia. 1 it is more a term used to label a set of symptoms related to pain and

Slim

7/19/21 6:50pm

4. Your symptoms don’t sound like fibromyalgia. Pain sounds too specific.

5150man

7/19/21 6:52pm

Yeah, pain is very specific: base of my neck, inner portion of both shoulder

BleedCougarBlue2

7/19/21 7:04pm

Not a doctor, but deal with fibro claims a lot as an insurance lawyer and this

Jay Rick

7/19/21 7:15pm

@ Jay Rick - Thx a lot for your input!

BleedCougarBlue2

7/19/21 7:24pm

Interesting. Can you pls explain #3? Why the negative stigma? Is fibromyalgia

BleedCougarBlue2

7/19/21 7:01pm

Because there is a lot of controversy whether it is even real and most people

byu1

7/19/21 7:07pm

I did notice it was a relatively "new" health problem in terms of diagnosis and

BleedCougarBlue2

7/19/21 7:10pm

Imagine dealing with someone whether, professionally or personally who is constantly complaining and tired and depressed

Slim

7/19/21 7:30pm

Sheesh, that would suck. I have no patience "IF" someone is complaining about a

BleedCougarBlue2

7/19/21 7:52pm

<< Deleted >>

85fan

7/19/21 9:18pm

We’ve been dealing with fibromyalgia in our home for 20+ years. What you

neboutefan

7/19/21 6:53pm

Thx for replying. Only symptoms are what I listed. FWIW, that sounds awful.

BleedCougarBlue2

7/19/21 7:05pm

If a neurosurgeon is going to see you he thinks it’s a neck problem he can fix

HoustonCougar

7/19/21 7:02pm

I chalk that up to a clueless military doc who refers anything abnormal to a

BleedCougarBlue2

7/19/21 7:07pm

maybe so. Likely the civilian neurosurgeon won’t waste his time unless surgical

HoustonCougar

7/19/21 7:12pm

<< Deleted >>

BleedCougarBlue2

7/19/21 7:16pm

Be glad you aren’t being told it is Fibro. That isn’t it

byu1

7/19/21 7:05pm

More likely cervical radiculopathy. Have you had an MRI?

byu1

7/19/21 7:09pm

Yep, last Tuesday. Have not yet met w/ anyone to interpret results. That's

BleedCougarBlue2

7/19/21 7:11pm

One more thing: X-rays supposedly revealed osteophyte (bone spur) on my neck.

BleedCougarBlue2

7/19/21 7:14pm

Doesn’t sound like fibro to me

Medute

7/19/21 7:45pm

Yeah, I'm starting to feel more hopeful about it. Just read a little about

BleedCougarBlue2

7/19/21 7:56pm

Yes, although the neurosurgeon might retake them anyway

Medute

7/19/21 8:33pm

My wife has it. Not fun.

85fan

7/19/21 9:13pm

I'm sorry to hear that. Sounds like it is tough to diagnose & tough to treat.

BleedCougarBlue2

7/19/21 9:31pm

Why are you waiting for your MRI results?

cougarstrong

7/19/21 9:30pm

Hmmmm.....did not know you could do this. Thought the neurosurgeon would be the

BleedCougarBlue2

7/19/21 9:33pm

Nope, radiologist reads it before it gets sent to the surgeon.

cougarstrong

7/20/21 1:55am

Fibromyalgia, like POTS & Chronic Fatigue, isn't really a defined entity

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