That’s why we have an electronic end-of-life care registry. People

Apr 7, 2021
8:13:22pm

AF Cougar All-American

need to make their wishes known and not put the burden on children / survivors

Electronic End-of-Life Care Registry: the Utah ePOLST Initiative

As a patient’s end-of-life approaches, it is typical for the disease to be the focus of treatment instead of the dying patient. There is limited congruence between the care preferred by patients and the treatment actually delivered to patients ...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3900183/

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AF Cougar

Bio page: AF Cougar
Joined: Jan 26, 2002
Last login: Apr 26, 2024
Total posts: 12,560 (290 FO)

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Messages

Author

Time

No matter how sick someone is and close to end of life there are some families who will ALWAYS be angry and offended if

Slim Intervention Needed

4/7/21 7:48pm

I agree. End of life care in America needs a significant paradigm shift.

hebercreeper

4/7/21 7:52pm

This should be everyone's take home message from this pandemic

kiyoshige

4/8/21 6:47am

Being Mortal; Everyone needs to read it

Noni Fruit

4/7/21 8:00pm

Amazing and important book

CDV

4/7/21 8:13pm

Yep. My Dad had terminal cancer. He chose to die at home. Maybe could have lived a few more months in a hospital

SpotOnOpinionsGuy

4/7/21 8:01pm

Death panels!!!!

JoeMamaBesser

4/7/21 8:02pm

What’s really sad is that because so many people refuse to think about these things or have these conversations we end

Slim

4/7/21 8:10pm

Couldn’t agree more. Both my parents passed away over the last 12 months...

JoeMamaBesser

4/7/21 8:21pm

You need government to intervene in private decisions about end of life care? Ok

SwanSong

4/7/21 8:30pm

That's not what the law called for but the talking point obscured that as

JoeMamaBesser

4/7/21 8:36pm

The problem with that line of thinking is that the government is already taking our money without our permission to pay

Slim

4/7/21 8:42pm

Also the decision was made long ago to have a single payer system for old people

JoeMamaBesser

4/7/21 8:46pm

If I remember correctly there were no panels in the proposal. It was an

StalwartBraveTrue

4/8/21 9:02am

Working in ICU was eye opening. Its so sad what kids subject their parents to.

Backcountry

4/7/21 8:03pm

My wife and I have this discussion. It’s not fun but we do. My kids are aware of

BPintheCouv

4/7/21 8:05pm

That’s why we have an electronic end-of-life care registry. People

AF Cougar

4/7/21 8:13pm

Great step but not enough. You have to actually talk to your loved ones. And for many people you have to educate

CDV

4/7/21 8:15pm

Amen. 7/10 times families will go directly against a POLST.

StalwartBraveTrue

4/7/21 9:48pm

I found this video to be helpful in deciding when to pull the plug

TCuz

4/7/21 8:17pm

When we talked to one family about hospice, they got angry with us because

KingDave

4/7/21 8:24pm

There's a story that has been handed down in my family

justAnotherCoug

4/7/21 8:32pm

Agree. My dad's decision about terminal illness was a real blessing

Orem58thBall

4/7/21 9:13pm

There was an article that was eye opening to me: how doctors die.

Cougarclaw

4/7/21 9:27pm

Great post. I volunteered in a large ICU for 13 years. The experience caused

WallaX2

4/7/21 9:39pm

“No heroic measures” is the worst line ever.

StalwartBraveTrue

4/7/21 9:47pm

No one knows what it actually means. Additionally there are lots of documents drawn up by lawyers RE end of life care

Slim

4/7/21 9:57pm

Completely agree. No one can convince me there’s a good substitute for talking

StalwartBraveTrue

4/9/21 11:48pm

I had a patients daughter ask me directly “would you place this g-tube if this

gtown

4/7/21 11:17pm

My dad had an early LVAD and it made hospice and dying very difficult. He needed to pass, but without the natural

mvtoro

4/8/21 12:17am

A big part of the problem is so many want to fight all the way despite odds

Bobmarleyjr

4/8/21 1:03am

my BIL had pancreatic cancer fought 4 two years

kiyoshige

4/8/21 6:52am

Wow that’s a long time to survive pancreatic cancer

Bobmarleyjr

4/8/21 10:32am

Yes it was. By the end the family was ready. Some are not.

kiyoshige

4/8/21 11:38am

It seems hospice is just pumping morphine

vabeachcoug

4/8/21 12:55pm

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